Vasculitis is a family of rare diseases that can affect people of all ages. Vasculitis means inflammation of the blood vessels, arteries, veins or capillaries. When such inflammation occurs, it causes changes in the walls of blood vessels, such as weakening and narrowing that can progress to the point of blood vessel blockage. A result of Vasculitis is that the tissues and organs supplied by affected blood vessels do not get enough blood. This can cause organ and tissue damage. The purpose of Vasculitis Ireland Awareness is to offer support and information to patients and family members where needed.
Charity number NIC 105731 RCN 20204769 HMRC Number XT34911
Registered on Orphanet
Member of Vasculitis.EU
Report and links to the 2019 conference held in Newcastle, Co. Down
VIA Conference 2019 Report
Adherence to Medication UKIVAS Ireland 5 october[186]
Patient Vasculitis Talk Oct 2019 Final
NI Vasculitis Survey Interim findings
Link to VINE (local clinics options in Republic of Ireland):
https://www.tcd.ie/medicine/thkc/vasculitis/
Link to AVERT study information:
https://www.tcd.ie/medicine/thkc/avert/
Link to patientMpower app:
iOS (iPhone Apple):
https://apps.apple.com/ie/app/patientmpower/id1077787395
Google Play (Android):
https://play.google.com/store/apps/details?id=com.maithu.transplantbuddy&hl=en_IE
Up coming events:-
Cork meeting on 4th April has been cancelled. due to Covid 19. We will have an online meeting instead, so not restricted to Munster area. To join, pm me your Skype address on our Facebook page. It will be held 11am-1pm Saturday 4th April. We will have research Nurse Aisling Murphy and Dr Nathan Lea from Leeds presenting on Patient data and Research. We would love as many as possible to join us.
Vasculitis Ireland Awareness is a non-profit organisation…We rely solely on volunteers and charitable donations in order for our organisation to operate, help us to help others! |
VIA is a support group set up for patients of all the Vasculitis diseases, their carers and interested Healthcare Professionals in Ireland.
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In most cases, the cause of Vasculitis is unknown. A combination of factors can cause the inflammatory process to be set in motion. Vasculitis is an autoimmune disease and for reasons that are not yet understood, these diseases occur when the body mistakenly…Learn More
We hold regular meetings in Belfast and Dublin, for like minded people to come together and discuss their conditions, treatments and offer support, in a relaxed environment. Patients and all family welcome. Contact us for more information, times and locations…Learn More