Covid-19 For Patients With Vasculitis

UK and Ireland Vasculitis Society (UKIVAS). The UKIVAS (UK and Ireland Vasculitis Rare Disease Group) Registry is a collaboration between patients, clinicians and scientists to create the first comprehensive database of vasculitis patients in the UK and Ireland.

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Arthritis Ireland – Living well with programmes

MONDAY, 9 AUGUST 2021 FROM 19:00 UTC+01-20:00 UTC+01

Free  Online event

Detail

Event by Vasculitis Ireland Awareness
 
Online: us02web.zoom.us
 
Price: free
 
Public Anyone
 
Peter Boyd from Arthritis Ireland will come along and speak to us about their services which could help us manage our conditions.
Peter Boyd is the Services Support Officer with Arthritis Ireland, primarily managing the national Helpline, Peer to Peer service and online forum. Peter volunteered at all levels of the organisation, up to Board level, before taking on his current role in September 2019.
Peter has overseen the growth and expansion of the Helpline service from a fixed line service to a cloud-based remote service, while also seeing huge growth in engagement in online support services.
Peter is also a self-management leader, trained walking group leader and arthritis ambassador, and is therefore well placed to discuss all the services offered by Arthritis Ireland. The award winning self-management course, ‘Living Well with Arthritis’, has seen thousands of participants learn skills and tools to manage and live with all forms of arthritis.
 
Click below link to register interest.

 

AVERT Project Patient Engagement Report October 2020

View the report by clicking here.

VIA 2020 Conference

 

The VIA Conference for 2020 was held online due to Covid-19 and included a range of speakers who covered topics such as Vasculitis Care During the Covid-19 Pandemic, Recent Advances in Vasculitis Care and much more.

Click here to view the VIA Conference for 2020

What is Vasculitis?

Vasculitis is a family of rare diseases that can affect people of all ages.

Vasculitis means inflammation of the blood vessels, arteries, veins or capillaries. When such inflammation occurs, it causes changes in the walls of blood vessels, such as weakening and narrowing that can progress to the point of blood vessel blockage.

A result of Vasculitis is that the tissues and organs supplied by affected blood vessels do not get enough blood. This can cause organ and tissue damage.

The purpose of Vasculitis Ireland Awareness is to offer support and information to patients and family members where needed.

Charity Number  NIC105731RCN20204769   

HMRC Number XT34911 

Registered on Orphanet

Vasculitis International

Member of Vasculitis International

 

 

    Vasculitis Ireland Awareness is a non-profit organisation…

      We rely solely on volunteers and charitable donations in order for our organisation to operate, help us to help others!

Who We Are

VIA is a support group set up for patients of all the Vasculitis diseases, their carers and interested Healthcare Professionals in Ireland.

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What causes Vasculitis

In most cases, the cause of Vasculitis is unknown. A combination of factors can cause the inflammatory process to be set in motion. Vasculitis is an autoimmune disease and for reasons that are not yet understood, these diseases occur when the body mistakenly...Learn More

Support Meetings

We hold regular meetings in Belfast and Dublin, for like minded people to come together and discuss their conditions, treatments and offer support, in a relaxed environment. Patients and all family welcome. Contact us for more information, times and locations...Learn More

 

We Are Partnered with the Following Organisations