Vasculitis is a family of rare diseases that can affect people of all ages. Vasculitis means inflammation of the blood vessels, arteries, veins or capillaries. When such inflammation occurs, it causes changes in the walls of blood vessels, such as weakening and narrowing that can progress to the point of blood vessel blockage. A result of Vasculitis is that the tissues and organs supplied by affected blood vessels do not get enough blood. This can cause organ and tissue damage. The purpose of Vasculitis Ireland Awareness is to offer support and information to patients and family members where needed.
Charity number NIC 105731 RCN 20204769 HMRC Number XT34911
Registered on Orphanet
Member of Vasculitis.EU
Up coming events:-
COME JOIN US FOR A VIRTUAL SUPPORT GROUP MEETING. Sat 4th April 11am to 1pm
On Saturday the 4th April at 11am grab a coffee fire up the computer, laptop, tablet or just use the phone and click on the link to join us (the more the merrier)
If you are asked for a password it is 772784.
https://zoom.us/j/992148942?pwd=TkVCTVg0ejYrVUllMEZNUDNSTWkvUT09
We hope you and yours are keeping safe and well in these uncertain times.
This virtual meeting will be a chance for us to talk about the present situation we all find ourselves in. and we will be joined by several speakers from Cork University hospital, and Leeds to speak to us about Patient data in research and find out our views and experience to help in a European wide research project (HELICAL).
To help us with call management, you are welcome to join with video and audio, but when not speaking we would ask you to remain on mute and raise your virtual hand when you need to speak. This helps reduce background noise and ensures everyone is heard.
We really look forward to you joining us on Saturday. This is a very new venture for us and we would love if you could be there.
Stay Safe and Well,
Report and links to the 2019 conference held in Newcastle, Co. Down
VIA Conference 2019 Report
Adherence to Medication UKIVAS Ireland 5 october[186]
Patient Vasculitis Talk Oct 2019 Final
NI Vasculitis Survey Interim findings
Link to VINE (local clinics options in Republic of Ireland):
https://www.tcd.ie/medicine/thkc/vasculitis/
Link to AVERT study information:
https://www.tcd.ie/medicine/thkc/avert/
Link to patientMpower app:
iOS (iPhone Apple):
https://apps.apple.com/ie/app/patientmpower/id1077787395
Google Play (Android):
https://play.google.com/store/apps/details?id=com.maithu.transplantbuddy&hl=en_IE
Vasculitis Ireland Awareness is a non-profit organisation…We rely solely on volunteers and charitable donations in order for our organisation to operate, help us to help others! |
VIA is a support group set up for patients of all the Vasculitis diseases, their carers and interested Healthcare Professionals in Ireland.
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