UK and Ireland Vasculitis Society (UKIVAS). The UKIVAS (UK and Ireland Vasculitis Rare Disease Group) Registry is a collaboration between patients, clinicians and scientists to create the first comprehensive database of vasculitis patients in the UK and Ireland. For current information on COVID19 and vaccines please click on link. where we will have Prof Alan Salama(Royal Free Hospital, UK), Dr Karl Gisslander,( Lund University Hospital, Sweden) Dr Sarah Moran (Cork University Hospital, Ireland) and Julie Power (Vasculitis Ireland Awareness) on a panel answering frequently asked questions posed by Dr Margaret Dunne (Co ordinator of the Future-Vasc project,TCD). To register click on the link below https://register.gotowebinar.com/register/4508915097613064544 To avoid Zoom bombing we would ask that you post your name when joining, so we do not eject you from the meeting. Vasculitis is a family of rare diseases that can affect people of all ages. Vasculitis means inflammation of the blood vessels, arteries, veins or capillaries. When such inflammation occurs, it causes changes in the walls of blood vessels, such as weakening and narrowing that can progress to the point of blood vessel blockage. A result of Vasculitis is that the tissues and organs supplied by affected blood vessels do not get enough blood. This can cause organ and tissue damage. The purpose of Vasculitis Ireland Awareness is to offer support and information to patients and family members where needed.Covid-19 For Patients With Vasculitis
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International Vasculitis Day 15th May
This year we are combining with ERN RITA to hold Vasculitis Question Time 12noon -1pm
What is Vasculitis?
Charity Number NIC105731
RCN20204769
HMRC Number XT34911
Registered on Orphanet
Member of Vasculitis International
Vasculitis Ireland Awareness is a non-profit organisation…We rely solely on volunteers and charitable donations in order for our organisation to operate, help us to help others! |