We try to meet every three months in Belfast, Dublin and Galway.
These meetings will be mostly coffee and chat events, where we can meet others living with the same issues associated with living with Vasculitis and learn from each other. Occasionally when requested, a speaker will be organised to give more detailed information about managing symptoms, services available and self help coping mechanisms.
UPCOMING MEETINGS AND DATES FOR YOUR DIARY
25th February 2017, Lisburn city Library, 11am-1pm. Sarah Trimble, Nutrition Therapist will share information on diet and the immune system, managing inflammation and reducing risk of depression. for more details and to book your place contact the organiser, Fionnuala McKinney at email@example.com
28th February 2017, Croi House, Galway city, 6pm – 7.30pm, Coffee and Chat. We are keen to set up a west of Ireland support group branch so come along and give us your ideas. Friends and family welcome. For more details contact the organiser Patricia Ryan at firstname.lastname@example.org
28th February 2017, Joint North and South Rare Disease Day,Here are the details of the 2 Events being held in Dublin and Londonderry for Rare Disease Day 2017 if you are interested in going please click on the link and register.
Our next Dublin one will be our All Ireland Vasculitis Conference, was held on 5th & 6th November 2016, in the Royal Marine Hotel, Dun Laoghaire, Co. Dublin.
This year we had Dr Sarah Mackie visiting from Leeds to talk about her work with Large Vessel Vasculitis, Giant Cell Vasculitis and Polymyalgia Rheumatica, Prof Mark Little, Dr Eamonn Molloy and Dr Sarah Moran talking about developments in Vasculitis in Ireland, Chartered Psychologist, Patricia McCrystal talked about the effect of chronic illness on relationships, Physiotherapist, Aine Kelly talked about Exercise in Vasculitis, do’s and don’ts, and we finished on Sunday with gentle mindfulness and relaxation exercises.
We had our AGM at 9.30 on Sunday morning of the conference, 6th November
Cork , 6th December, Jury’s Hotel, Anderson’s Quay, 6.30-8.30 Coffee and Chat
7th December, Clarion Hotel, Cork city, 9.30-5pm
‘National Scleroderma + UK & Ireland Vasculitis Society Meeting’
Check back here or our facebook page for details of future meetings.