NI Vasculitis Care Survey 2019

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https://www.smartsurvey.co.uk/s/Vasculitis_Care_2019/
This is for people living in NI only
This survey was developed to complement the project ECHO scheme for Vasculitis in Northern Ireland and gives individuals living with Vasculitis a chance to express their opinion on the treatment they receive and the effect it has on living every day with this condition.  It has been designed by patients, for patients, […]

Let’s Talk About… Work, Alternatives and Medical Retirement

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Come and join us for a coffee and a chat about work, volunteering, retirement with a chronic illness.
When: Monday 26 June 2017 @ 11am

Location: Niki’s Kitchen Cafe

107 Central Promenade, Newcastle BT33 0EU
028 4372 6777
For more details or to book your place, contact Emma at emmadtinsley@gogglemail.com

Northern Ireland Behcet’s Support Group meeting

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Saturday 17th June, 2-4pm, in the PIPS Building, 30 Kilmorey Street, Newry BT34 2DE.
TOPIC: MANAGING PAIN AND FATIGUE SPEAKER :DR Ann O Hanlon BA (Hons), MSc, PhD Ann is the director of The I Can centre, and is also qualfied in Person centered Counselling and CBT Thanks to the funding received from the Lottery we (Behcet’s NI) are able to […]

First NI Vasculitis Conference, 24th May 2015, Burrendale hotel, Newcastle

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 Vasculitis Ireland Awareness support group to date, by Julie Power
Vasculitis the basics, by Dr Dearbhla Kelly, Specialist Vasculitis Clinic, St James’ Hospital, Dublin
‘How we can help ourselves’, Self Help and Symptom Management groups available in NI, by Tricia Bowers Arthritis Care
‘How to get the most from our appointments and help ourselves’- Kieran Brogan, Patient Advocate, Peer Support Worker  
Pain Management, […]

 

A Charter for Patient Involvement

–  Medicines, Assessment and Reimbursement in Ireland

We are proud to be one of 35 signatories in this important document, which calls on the Irish government to improve transparency, accountability and communication on how medicines are assessed and reimbursed by the state, was co-ordinated by Irish Platform for Patient Organisations Science and Industry (IPPOSI), the Medical Research Charities Group (MRCG, and Rare Disease Ireland (RDI). It sets out 29 actions that the relevent state agencies (Department of Health, Health Service Executive, National Centre for Pharmacoeconomics) should take to inform and include patient perspectives at every stage of the process.

https://www.ipposi.ie/wp-content/uploads/2019/02/IPPOSI_Patient-Charter_A4_LO_FINAL.pdf