We try to meet every three months in Belfast, Dublin and Galway.
Dates, times and venues will be posted on the website and our Facebook page, and by email to those on our mailing list.
These meetings will be mostly coffee and chat events, where we can meet others living with the same issues associated with living with Vasculitis and learn from each other. Occasionally when requested, a speaker will be organised to give more detailed information about managing symptoms, services available and self help coping mechanisms.
Upcoming meetings (Please let us know in advance if you intend to come along so we can arrange for numbers and have your details if we need to cancel at short notice).
Friday 15th March, Jury’s Inn, Anderson’s Quay, Cork 4-5.30pm. Planning meeting for future meetings in the Munster area. Organiser Julie Power, Facilitator Seamus Beausang.
Wednesday 20th March, Tallaght Hospital, Seefin room (First floor in the education centre), 4-5.30pm. Focus group meeting on what we else we would like from the Vasculitis PatientmPower app. This is being jointly organised by researchers from TCD who are working on this and hope to possibly develop links to useful information for us in living with vasculitis. Organisers Julie Power (VIA), Kevin Morris, Lucy Henderson(both TCD Research).
Thursday 5th July, Fir Trees Hotel, Strabane, 7pm-8.30, Organiser Julie Power and Karen Gallagher (firstname.lastname@example.org)
Saturday 14th July, Committee meeting, The Central Hotel, Dublin, Time 12.30-2.00. Organiser Patricia Ryan (email@example.com)
Tuesday 29th May, 2018, Committee meeting at the Future Health Summit, Conference Centre, Dublin, 11am-12.30,
Thursday 8th May, 2018, Fir Trees Hotel, talk about Patient Buddy app.Strabane, 7pm-8.30, Organiser Julie Power
Saturday 21st April, 2018, NI Behcet’s support group meeting, Lisburn Library, 11am- 1pm. Organiser Fionnuala McKinney.
Friday 13th April, 2018, Coffee and Chat in Dobbie’s Cafe, Lisburn, 3pm-4.30. Organiser Emma Tinsley.
Wednesday 11th April, 2018, Coffee and Chat in Royal Marine Hotel, Dun Laoghaire, 11am-12.30. Organiser Vivienne Beattie.
Saturday 31st March 2018, Coffee and Chat in Cass and Co, cafe Dungarvan, 11am-12.30. Organiser Julie Power
Monday 12th March 2018, 11am- 1pm, PMR/GCA UK,NI support group meeting, Premier Inn, Lisburn
Saturday 9th December 2017, Annual Christmas Lunch, 1.30pm – 3pm, Cafe Parisien, Belfast.
Saturday 28th and Sunday 29th October 2017, Sixth Annual All Ireland Vasculitis Conference, 11am(28th) – 12noon(29th), Royal Marine Hotel, Dun Laoghaire, talks from a patient and carer panel about living with Vasculitis, Updates on progress of Vasculitis Care Pathway, latest research in Vasculitis, ENT issues, Bone Care, Patient Buddy App, and Fatigue management techniques.
Monday 9th October,2017, 11am – 1pm, PMR/GCA UK, NI support group meeting, Premier Inn, Lisburn
Monday 26th June 2017, 11am- 12.30, Let’s Talk About Work, Alternatives and Retirement, Nikki’s Cafe, Newcastle, Co. Down
Friday 12th May 2017, 3pm-5pm, Let’s Talk About Travelling with a Chronic Illness, Tesco Extra, Banbridge
Saturday 25th March 2017, 12noon- 2pm, Let’s Talk about Welfare Reform, Tesco Community room, Newtownbreda, Belfast. Two of our members attended a CAB workshop on welfare reform and how it would affect people living with Vasculitis. This was an opportunity to feed back some of the information and guidance to our members.
25th February 2017, Lisburn city Library, 11am-1pm. Sarah Trimble, Nutrition Therapist shared information on diet and the immune system, managing inflammation and reducing risk of depression. This was kindly organised by the NI Behcet’s support group, the organiser being Fionnuala McKinney. Notes from this meeting are available.
8th February 2017, Croi House, Galway city, 6pm – 7.30pm, Coffee and Chat. We are keen to set up a west of Ireland support group branch, several people joined the organiser Patricia Ryan and it is hoped this could be repeated with more people attending in the future.
28th February 2017, Joint North and South Rare Disease Day, events were held in Dublin and Londonderry for Rare Disease Day 2017, we had several members attending and an information stand at the Dublin event.
All Ireland Vasculitis Conference, was held on 5th & 6th November 2016, in the Royal Marine Hotel, Dun Laoghaire, Co. Dublin.
Dr Sarah Mackie visited from Leeds to talk about her work with Large Vessel Vasculitis, Giant Cell Vasculitis and Polymyalgia Rheumatica, Prof Mark Little, Dr Eamonn Molloy and Dr Sarah Moran talked about developments in Vasculitis in Ireland, Chartered Psychologist, Patricia McCrystal talked about the effect of chronic illness on relationships, Physiotherapist, Aine Kelly talked about Exercise in Vasculitis, do’s and don’ts, and we finished on Sunday with gentle mindfulness and relaxation exercises.
We had our AGM at 9.30 on Sunday morning of the conference, 6th November.
Cork , 6th December, Jury’s Hotel, Anderson’s Quay, 6.30-8.30 Coffee and Chat
7th December, Clarion Hotel, Cork city, 9.30-5pm
‘National Scleroderma + UK & Ireland Vasculitis Society Meeting’
Check back here or our facebook page for details of future meetings.