We are at the exciting stage of designing a new app with PatientmPower, Clinicians and researchers in Trinity Kidney Research and Vasculitis UK. This app will be used to help us manage our symptoms, record our health over time and hopefully help us identify triggers which cause flares. It is at the very early stages of development and is currently at design and trial stage.
It is anticipated that it will record
- Activity levels (walking, running, cycling)
- Medication usage & self reported adherence
- Wellbeing through ePRO (EQ-5D)
- Health Journals / symptom journals
- Home Diagnostics data (e.g. Blood pressure & weight)
- Location data
The last item will be correlated against other data sets, e.g. weather, air quality, notifiable diseases etc to help determine environmental effects on our condition.
For more information contact eamonn@patientmpower.com
Good idea due to variance of symptoms and medication
Focus group being held on Wednesday 20th March, in Tallaght Hospital, Seefin Room, 4-5.30pm, on what other information we would find useful on this app.
Researchers at Trinity College are looking for vasculitis patients to help in their efforts to automatically source online content for vasculitis patients, which might appear on the VIA website or in the patientMPower Vasculitis app. You can If you wish to participate this is the link to the online survey.
https://scsstcd.qualtrics.com/jfe/form/SV_7VXPPlkAmOmM6Dr