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Let’s Talk about travelling with a Chronic Illness
With the holiday season approaching, let’s talk about assistance available when travelling by public transport, plane and train, Travel Insurance, EHIC card, Smart card, Accommodation and all things we need to consider when travelling. This is a good opportunity to come along for a coffee and chat with others who are affected by any of the Vasculitis diseases. Anyone with an auto immune disorder is welcome to come along too as we share many issues. To confirm attendance or for further information, contact Emma, at emmadtinsley@googlemail.com
Find out more »Behcet’s Society 2017 Annual Conference & AGM – Manchester
The Annual Conference is free to attend, but you will need to book your tickets in advance. The Pendulum Hotel and Manchester Conference room are fully accessible with ramps and lifts and have many guest rooms available. Refreshments and lunch will be provided. This is a link to directions and car parking information: https://www.pendulumhotel.co.uk/locationThere are many other hotels near to the Conference venue in Manchester. Email for more information
Find out more »Caroline’s Coffee Morning Portadown
Just a reminder of Caroline's coffee ☕️ morning on Saturday 09 Sep in Portadown. All those who where going to attend the Dungannon coffee and chat meeting please note the venue has changed to Caroline's coffee morning in Portadown. Caroline (our fund raiser extrodinaire) has organised a Coffee, Cake and Clothes event for charity VIA and McMillan Cancer Support. Come along and join us. There will be a coffee and chat meeting (and have some cake!) for those of us who want to catch up on all things Vasculitis. New members welcome.
Find out more »All Ireland Vasculitis Conference 2017
Come along and join us for our sixth All Ireland Vasculitis conference, where you will have an opportunity to meet others living with similar symptoms and day to day issues. This year we plan to have talks and feedback from those affected by Vasculitis, Specialist Consultants involved in Vasculitis treatment, and updates in developments in the Vasculitis world. The cost of the conference are being subsidised with fundraising by members throughout the year. Lunch and refreshments are included. Come along and learn more about living well with the Vasculitis diseases from others in a similar situation and the specialists. Anyone affected with similar auto immune diseases and interested healthcare professionals welcome.We look forward to seeing you there.B&B available at the Royal Marine at a special rate for attendees €140 double/twin, €130 single, but needs to be booked by September 23rd 2017.
Find out more »Strabane Support group meeting
Come along and meet others living with Vasculitis. We are looking into having a speaker for this meeting. Please let Julie know if you wish to come along so we have an idea of numbers. We look forward to seeing you there.
Find out more »2019 All Ireland Vasculitis Conference
This will be our eighth annual All Ireland vasculitis conference and this year, we are holding it in the seaside town of Newcastle, Co. Down. Clare Lodge is a registered House with Tourism NI and provides accommodation for up to 52 people in a mix of twin, double and family size rooms. All have ensuite facilities, free Wifi, flat screen televisions and tea and coffee making facilities. All rooms are wheelchair accessible with a lift for ease of access.The premises also boasts a large dining hall/indoor activity space, lounge and an outdoor seating area with a full view of the beach. In addition there is a fully-functioning kitchen and all meals will be provided - please let us know in advance of any dietery requirements. Free secure parking is available on site. We have been able to secure the entire facility for the weekend for a reasonable rate. We will have guest speakers from the Vasculitis world providing current information on treating and managing vasculitis, which will be confirmed nearer the time. There will be opportunity to mix with others living with vasculitis and those who treat us, share suggestions, have breakout sessions and to relax with beautiful promenade walks or ice cream!. We have venue from the afternoon of Friday 4th, so people can check in any time after 4pm and evening meal will be provided. The conference will start on Saturday morning from 10am-5pm, and then Sunday from 10am to noon. The nightly price includes accommodation, meals and conference costs. 2 nights single room occupancy accommodation £120 2 nights shared occupancy accommodation £100 pp 1 nights accommodation £75 Conference only (refreshments + lunch included) £35
Find out more »Meeting in Cork
Bru Columbanus Cardinal Way Wilton Cork Tel: (021) 434 5754 https://www.brucolumbanus.com/the-house/ The meeting will be from 11am-1pm and we have Tim O’Sullivan and some of his team from Arthritis Ireland coming along to talk about the courses, services and workshops that they run which could be useful to our members. I
Find out more »Meeting in Strabane
Fir Trees Hotel Tea/coffee and scones
Find out more »Public Lecture
We are holding a public lecture on the 25th November at 18.30 in Trinity College, titled 'Environmental Triggers of AutoImmune Disease- from air to cell'. Prof. Little will introduce Prof. Xavier Rodó, who will talk about his research on the environmental triggers of vasculitis. We would be delighted to have members of VIA there. Eventbrite here.
Find out more »Meeting in Killough
Killough Community Hall, Killough, Co. Down Tea/coffee and home baked goodies Talk and demonstration by Mary Jane Burns, from Holistic Health and Well being company. Carers and family welcome.
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