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July 2018

Strabane Support group meeting

July 5, 2018 @ 7:00 pm - 8:30 pm
Fir Trees Hotel, Strabnae, Dublin Rd,
Strabane, BT82 9EA
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Free

Come along and meet others living with Vasculitis. We are looking into having a speaker for this meeting. Please let Julie know if you wish to come along so we have an idea of numbers. We look forward to seeing you there.

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October 2019

2019 All Ireland Vasculitis Conference

October 4, 2019 @ 5:00 pm - October 6, 2019 @ 2:00 pm

This will be our eighth annual All Ireland vasculitis conference and this year, we are holding it in the seaside town of Newcastle, Co. Down. Clare Lodge is a registered House with Tourism NI and provides accommodation for up to 52 people in a mix of twin, double and family size rooms. All have ensuite facilities, free Wifi, flat screen televisions and tea and coffee making facilities. All rooms are wheelchair accessible with a lift for ease of access.The premises also boasts a large dining hall/indoor activity space, lounge and an outdoor seating area with a full view of the beach. In addition there is a fully-functioning kitchen and all meals will be provided - please let us know in advance of any dietery requirements. Free secure parking is available on site. We have been able to secure the entire facility for the weekend for a reasonable rate. We will have guest speakers from the Vasculitis world providing current information on treating and managing vasculitis, which will be confirmed nearer the time. There will be opportunity to mix with others living with vasculitis and those who treat us, share suggestions, have breakout sessions and to relax with beautiful promenade walks or ice cream!. We have venue from the afternoon of Friday 4th, so people can check in any time after 4pm and evening meal will be provided. The conference will start on Saturday morning from 10am-5pm, and then Sunday from 10am to noon. The nightly price includes accommodation, meals and conference costs. 2 nights single room occupancy accommodation  £120 2 nights shared occupancy accommodation £100 pp 1 nights accommodation £75 Conference only (refreshments + lunch included) £35    

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November 2019

Meeting in Cork

November 2, 2019 @ 11:00 am - 1:00 pm

Bru Columbanus Cardinal Way Wilton Cork Tel: (021) 434 5754 https://www.brucolumbanus.com/the-house/ The meeting will be from 11am-1pm and we have Tim O’Sullivan and some of his team from Arthritis Ireland coming along to talk about the courses, services and workshops that they run which could be useful to our members. I

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Meeting in Strabane

November 20, 2019 @ 6:30 pm - 8:00 pm

Fir Trees Hotel Tea/coffee and scones

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Public Lecture

November 25, 2019 @ 6:30 pm - 8:00 pm
Trinity Biomedical Sciences Institute 152 – 160 Pearse Street Dublin 2 Ireland + Google Map

We are holding a public lecture on the 25th November at 18.30 in Trinity College,  titled 'Environmental Triggers of AutoImmune Disease- from air to cell'.  Prof. Little will introduce Prof. Xavier Rodó, who will talk about his research on the environmental triggers of vasculitis. We would be delighted to have members of VIA there. Eventbrite here.

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Meeting in Killough

November 30, 2019 @ 11:00 am - 1:00 pm

Killough Community Hall, Killough, Co. Down  Tea/coffee and home baked goodies Talk and demonstration by Mary Jane Burns, from Holistic Health and Well being company. Carers and family welcome.

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April 2020

Zoom virtual meeting

April 28 @ 11:00 am - 1:00 pm

Below are details of how to join our next Zoom meeting on Tuesday morning 11am, on 28th April. We will be joined by Vicky who is the new Rare Kidney Disease Research nurse and she will be talking to us about the PatientMpower app, how to download it, how to use it and why we should use it.  We look forward to as many of you as possible joining us.  To help us with call management, you are welcome to join with video and audio, but when not speaking we would ask you to remain on mute and raise your virtual hand when you need to speak. This helps reduce background noise and ensures everyone is heard.  We will be using a waiting room facility and the password to help keep the call secure.  Julie Power is inviting you to a scheduled Zoom meeting. Topic: Julie Power's Zoom Meeting Time: Apr 28, 2020 11:00 AM Dublin Join Zoom Meeting https://zoom.us/j/94753870893?pwd=S1FlNEFmQnBKdkx6QlluazVXZnBodz09 Meeting ID: 947 5387 0893 Password: 086007 One tap mobile +35316533897,,94753870893#,,#,086007# Ireland +35316533898,,94753870893#,,#,086007# Ireland Dial by your location         +353 1 653 3897 Ireland         +353 1 653 3898 Ireland         +353 6 163 9031 Ireland         +353 1 536 9320 Ireland         +353 1 653 3895 Ireland         +44 208 080 6591 United Kingdom         +44 208 080 6592 United Kingdom         +44 330 088 5830 United Kingdom         +44 131 460 1196 United Kingdom         +44 203 481 5237 United Kingdom         +44 203 481 5240 United Kingdom Meeting ID:…

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May 2020

Zoom meeting

May 5 @ 11:00 am - 1:00 pm

We hope to be joined by Patient Data Researchers Nathan and Maria again to feedback on last month’s meeting. Below are the links so you can have an idea of where this research is coming from   http://helical-itn.eu/research-projects/esr15/   http://helical-itn.eu/research-projects/ Join Zoom Meeting https://us02web.zoom.us/j/87091950480?pwd=dFhscklVcEtWMlNHVnVOcTNSY1Mrdz09 Meeting ID: 870 9195 0480 Password: 023452 One tap mobile +441314601196,,87091950480#,,1#,023452# United Kingdom +442030512874,,87091950480#,,1#,023452# United Kingdom   Dial by your location         +44 131 460 1196 United Kingdom         +44 203 051 2874 United Kingdom         +44 203 481 5237 United Kingdom         +44 203 481 5240 United Kingdom Meeting ID: 870 9195 0480 Password: 023452 Find your local number: https://us02web.zoom.us/u/klw4IBO8K

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International Vasculitis Day

May 15

International Vasculitis Day is coming up on Friday.  We wanted to have a fun walk and picnic but now, we will have virtual walks and maybe a picnic in our own homes. Please get in touch this evening if you are interested. Thank you.

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October 2020

2020 Vasculitis Ireland Awareness Conference

October 9 @ 6:30 pm - October 10 @ 3:00 pm

This year due to COVID-19 restrictions we have decided to have our Annual Conference Online via a zoom call presentation. We will be holding the Conference over 2 days:   Friday October 9th 2020: 6.30 to 8.30pm  & Saturday October 10th 2020: 11am to 3pm. We would like to extend our invitation to all health care professionals and patients.  We have Specialist Vasculitis Consultants coming to talk to us about the different types of Vasculitis,with opportunities to ask questions, we have people talking about the lived experience, and updates on treatments and research. This year we also have some Art Therapy and Music Therapy introductions by qualified therapists. Our programme is below and attached here to this email. We would appreciate it if you are interested in attending if you could let us know by return email or registration on eventbrite at this link if you wish: https://2020vasculitisireland.eventbrite.co.uk    The conference this year is free of charge. We will send on details closer to the date of how you can make a donation to our charity if you wish to.) Please do save the date and we look forward to seeing you there online, Also we have been asked to send a reminder of the Decompress Study, studying COVID-19 in Vasculitis: With COVID-19 cases now on the rise, if you do contact the virus please contact the Research Nurse at this email address: rkdnurse@tcd.ie to take part in this important study. We kindly ask people to print out the flyer attached and hand it in at their GP practices/Clinics so that if they should contract COVID19, they will be immediately able to contact this study. Video Link, Prof. Mark Little discussion DeCOmPRESS Study. If you require any further information, please do not hesitate to…

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