Rare Disease Day Reception at Stormont

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Rare Disease Day Reception at Stormont

February 29, 2016 @ 5:00 pm - 7:00 pm

FREE

The Long Gallery Reception is a chance to hear from Alastair Kent OBE, the Chair of the UK Rare Disease Forum, about the role of patients in driving and developing change; and to hear from Minister Simon Hamilton about his vision of the way ahead.

NIRDP International Rare Disease Day Reception at Stormont

17.00 to 17.30: Registration
17.30.to 17.45: Welcome and introduction: Kieran McCarthy, MLA; Dr Vivienne  McConnell, Clinical Lead for Medical Genetics

17.45 to 18.00: Alastair Kent OBE: The role of empowered patients in oversight

18.00 to 18.10: Minister Simon Hamilton MLA: Working together to provide high quality care for people with rare diseases
18.10-18.15: Thanks and Close: Christine Collins, Chair NIRDP
18.15 to 19.00: Photo Opportunities and Networking: Refreshments

Details

Date:
February 29, 2016
Time:
5:00 pm - 7:00 pm
Cost:
FREE
Event Category:
Website:
http://www.eventbrite.co.uk/e/nirdp-international-rare-disease-day-reception-at-stormont-tickets-20565557135?aff=ebrowse

Organizer

NIRDP
Website:
www.nirdp.org.uk

Venue

The Long Gallery
Parliament Buildings, Stormont
Belfast, BT4 3XX United Kingdom
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