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Rare Disease Day Reception at Stormont
February 29, 2016 @ 5:00 pm - 7:00 pm
FREEThe Long Gallery Reception is a chance to hear from Alastair Kent OBE, the Chair of the UK Rare Disease Forum, about the role of patients in driving and developing change; and to hear from Minister Simon Hamilton about his vision of the way ahead.
NIRDP International Rare Disease Day Reception at Stormont
17.00 to 17.30: Registration
17.30.to 17.45: Welcome and introduction: Kieran McCarthy, MLA; Dr Vivienne McConnell, Clinical Lead for Medical Genetics
17.45 to 18.00: Alastair Kent OBE: The role of empowered patients in oversight
18.00 to 18.10: Minister Simon Hamilton MLA: Working together to provide high quality care for people with rare diseases
18.10-18.15: Thanks and Close: Christine Collins, Chair NIRDP
18.15 to 19.00: Photo Opportunities and Networking: Refreshments