This year due to COVID-19 restrictions we have decided to have our Annual Conference Online via a zoom call presentation.

We will be holding the Conference over 2 days:  

Friday October 9th 2020: 6.30 to 8.30pm 

& Saturday October 10th 2020: 11am to 3pm.

We would like to extend our invitation to all health care professionals and patients. 

We have Specialist Vasculitis Consultants coming to talk to us about the different types of Vasculitis,with opportunities to ask questions, we have people talking about the lived experience, and updates on treatments and research. This year we also have some Art Therapy and Music Therapy introductions by qualified therapists. Our programme is below and attached here to this email.

We would appreciate it if you are interested in attending if you could let us know by return email or registration on eventbrite at this link if you wish:

https://2020vasculitisireland.eventbrite.co.uk

 

 The conference this year is free of charge. We will send on details closer to the date of how you can make a donation to our charity if you wish to.)

Please do save the date and we look forward to seeing you there online,

Also we have been asked to send a reminder of the Decompress Study, studying COVID-19 in Vasculitis: With COVID-19 cases now on the rise, if you do contact the virus please contact the Research Nurse at this email address: rkdnurse@tcd.ie to take part in this important study.

We kindly ask people to print out the flyer attached and hand it in at their GP practices/Clinics so that if they should contract COVID19, they will be immediately able to contact this study.

Video Link, Prof. Mark Little discussion DeCOmPRESS Study.

If you require any further information, please do not hesitate to contact us at the contact details below.

Stay Safe and keep in touch,

Patricia Ryan (Ireland)          Julie Power (NI)                                            Valerie Logan

 ryanp48@live.ie                     vasculitisireland10@gmail.com                    vasculitisirelandawareness@gmail.com

Chairperson                            Patient Contact and Policy Officer               Secretary

Kindest Regards

Vasculitis Ireland Awareness

Vasculitis Ireland Awareness

2020 Annual Conference-Programme

 

Day 1: Friday 9th October 2020:

6.30pm. Welcome & Introductions

6.40pm: Dr Michael Clarkson, Consultant Nephrologist, Cork University Hospital

Vasculitis care during the COVID19 Pandemic

 

7pm: Silvia Fleming- Teacher, The League of Health Ireland

Vasculitis Friendly Exercises.

 

7:15pm: Dr Eamonn Molloy, Consultant Rheumatologist. St Vincent’s Hospital, Dublin

Metabolic Syndrome: relevance to Vasculitis Covid and beyond.

 

7.45-8pm Tea/Coffee/Comfort Break

8pm Dr Pauric Dunne. Lecturer of Positive Psychology and Health RCSI.

Managing Anxious Thinking and Symptoms. Acceptance.

 

~Approx. 8.30pm close~

 

 

Day 2: Saturday 10th October 2020:

 

11am: Prof. Mark Little, Consultant Nephrologist, Tallaght Hospital, Dublin

Recent Advances in Vasculitis Care in Ireland.

11.45: Trinity Health Kidney Centre: Rare Kidney Disease Registry Nurse:

 AVERT study

 

11.50am: Dr Michelle O Shaughnessy Consultant Nephrologist Cork University Hospital.

 

12 noon: Silvia Fleming- Teacher -The League of Health Ireland

Vasculitis Friendly Exercises.

12.10-12.30pm: Tea/Coffee Break

12:30 Dr Emma Leacy  DeCOmPRESS: defining the disease course and immune profile of COVID-19 in the immunosuppressed patient.

1pm Dr Pauric Dunne. Lecturer of Positive Psychology and Health RCSI.

Body Scan Meditation

1.15-2pm: Lunch Break

 

2pm Dr. Shanali Perera-Art Therapist & Rheumatologist.

Introduction to Art Therapy. Illness, Self-Expression & Human Resilience.

 

2.30 Cecil Armstrong- Patient Experience- & Questions and Answers- Dr. Chris Hill, Consultant Nephrologist, Belfast City Hospital.

 

2.50pm. Margarete Collins- Music Therapist professional member of IACAT

Introduction to Music Therapy.

 

3pm: Dr  Pauric Dunne. Lecturer of Positive Psychology and Health RCSI.

COVID-19 Managing Anxiety Meditation.

 

~3.10pm Close~